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Data Sharing

General Practice Data for Planning and Research: NHS Digital Transparency Notice

Click here for NHS Digital Transparency Notice

National Data Opt-Out

Important Notice 20th July 2021

The current NHS Digital (NHSD) extract of GP data for Research purposes (known as the GPDPR) has been delayed due to NHSD wishing to review the way in which this data will be collected, to conduct more public involvement and information about the plans and change the way in which patients can opt out of the extract of their GP data.

Currently the only way to opt out is to complete a Type 1 opt out form and return this to the practice by the 1st September.  However, this extract will not be taken until the NHSD have changed the way it will take the data and respect the patient’s choice for using their data.  NHSD are introducing the following changes to the opt out process which will mean that patients will be able to change their opt-out status at any time::-

  • Patients do not need to register a Type 1 opt-out by 1st September to ensure their GP data will not be uploaded.
  • NHS Digital will create the technical means to allow GP data that has previously been uploaded to the system via the GPDPR collection to be deleted when someone registers a Type 1 opt-out.
  • The plan to retire Type 1 opt-outs will be deferred for at least 12 months while we get the new arrangements up and running and will not be implemented without consultation with the RCGP, the BMA and the National Data Guardian.

This means that you can opt out at any time in the future and NHSD will delete data that they already have taken for research purposes, the deadline of the 01/09/2020 has been delayed until a new system of opt out is developed.  Hopefully, this will be a simple centralised approach via the NHS app or NHS website to avoid paper form and administration work for your GP.

We will update you when we know more about the NHSD plans to change how you can control who has access to your data.

A national data opt-out has been introduced from 25 May 2018 to coincide with the new General Data Protection Regulations (EU). The system will offer patients and the public the opportunity to make an informed choice about whether they wish their confidential patient information to be used just for their individual care and treatment or also used for research and planning purposes.

If you don't want your confidential patient information to be used for research and planning, you can opt out of this.  If you do opt out, there are some specific situations where your data may still be used.  Data that does not identify you may still also be used.

Your confidential patient information will still be used to support your individual care. Any preference you set using this service will not change this.

If you opt out, your decision will only apply within the health and care system in England.  Your opt-out will not apply to your health data where you have accessed health or care services outside of England, such as in Scotland and Wales.

Manage your choice

You may use the online service, or request a print-and-post form, to make or change your choice at any time. You can also request assistance or make your choice using our telephone service on 0300 303 5678.  If you do not wish to opt out, you don't have to do anything at all.

You can also manage a choice on behalf of another individual by proxy. For example, if you are a parent or guardian of a child under the age of 13.

Manage your choice or continue reading for more information.

Click here to download the download the leaflet "Your data matters to the NHS" (PDF, 90KB)

There are also information leaflets in the surgery however Practice Staff cannot opt out for you.

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